This. And there are many other diseases that can be caused by Lyme as well, so don't ignore the co-infections such as the three B's which will need to be treated as well. When I initially was diagnosed with encephalitis, I was also given several tests for Lyme- the Western Blot and ELISA. Both came back negative but I had a different doc test again, and I paid for it out of pocket, because with older cases of Lyme, you can show a false negative more than once.
But the CDC doesn't recognize chronic lyme (old infection), so insurance doesn't cover it as there is no approved way to treat it. Or, they treat it as CFS or FM.
To the person who said Lyme and anti-vaxx overlap, you are maybe confused. Lyme patients- the last thing they want is to be around folks who have not vaccinated. Also, there is such a thing as a LLD (Lyme Literate Doctor). You may mock it, but they have helped thousands of people regain some normalcy back into their lives.
One of my nurses, when I was going through infusion treatment, asked me about Lyme initially (because in rare cases it can cause enceph), confirmed she has seen many many cases of Lyme here in our state, but still 'they', whoever the fuck 'they' are, still say there are no documented cases. It's cray cray the reasoning behind this. She agreed.
Listen to your body and filter the good info from the bad, there is a lot out there for sure. Shit, I know more about encephalitits here in the US than my own doctor at this point, it's a fucking joke. I respect she went to school, has the papers, etc, but when it comes down to it, I know when something is wrong (like finding out I had kidney disease just yesterday from a blood test I requested, not my doc- it's from the prednisone I am on, long story but don't take that shit regardless). Undoubtedly, your doc fucked up. I mean, you HAD the bullseye and she wasn't happy with the size? Wow. They just don't know everything at the end of the day.
There are so many unknowns with this illness, and still so much to be learned. Best wishes to your recovery. It seems to me that early treatment is your best bet for greatest recovery. Good luck.
Bookmarks