Fuck Alzheimers

[cat in january]

It’s in my family and scares the shit out of me. Big vibes Kenny. Hang in there. I know how hard it can be. Lean on family and friends so you can get some time for you.

[skinipenem]

Kenny awful news. I hope you and your family are able to make the best of what is left. Terrible diagnosis.

Consider reaching out early to therapists, palliative care and the like. They can help you negotiate the landscape.

For clarification, I am not vying for you to give up hope. Only hoping you can make the best of the good times.

Really awful.

Sent from my SM-S908U1 using Tapatalk

[Kenny Satch]

>>hugs<< K.
I think I've oozed over my experience with dementia enough here.

But there are various things to try. There's lots of quacks out there, but there's some studies that link various forms of dementia to diet.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6918878/ .
https://www.mcgill.ca/oss/article/fo...eimers-disease

There's a Ted talk on youtube where a doctor is able to reduce the effects of her husband's dementia by diet change.
(edit)

Anyway, I'm pulling for you, we're all in this together.

Thanks for this.
I've been using it and it does help

[Kenny Satch]

Lots of great advice and the messages of not giving up hope do help.
Believe me it's not all bad because we do have good moments where she can recall things and the days she can't, I try not to dwell on it. It's just crushing when she doesn't know we are married but she always remembers that we are in love. I'll take that over anything else. I fear the day her short term memory is all but gone and her ask me who I am. We go back 17 years so maybe it's long enough that she'll remember me. I clearly worry too much.

Again thanks. You all

[frorider]

As was posted already, she’s lucky to have you.

[Kenny Satch]

It's hard to think of anything worse. But it sounds like she's at least lucky to have you.

As was posted already, she’s lucky to have you.

Thanks to you both

[Self Jupiter]

++++vibes++++ your way, KS.

[::: :::]

Kenny
Stay present and enjoy the times you have
Too young
Love & peace to your family

[The Reverend Floater]

Kenny,

I've been dealing with dementia and my mom for a bit. It's been beyond intense as she's been living with us.

The one piece of advice I can give you is MAKE TIME FOR YOURSELF. This motherfucker will swallow you whole if you don't take just a little time for yourself on the regular.

Godspeed.

[teletech]

Joe Rogan has an interesting podcast with max lugavere about Alzheimer’s that’s worth a listen. Could be helpful. Fuck Alzheimer’s

[Dantheman]

Man, sorry Kenny. Early-onset is a tragic fate.

[Jax]

... We all whine about our physical issues (joints, connective tissue, muscles, bones) but they pale in comparison to brain probs..

This ^^

Continue to make memories, and bring up old ones often. Music and photos can help sometimes. Take a lot of walks together while you can, be in nature. Sending good thoughts.

[Mazderati]

Nothing resets perspective like major health issues.

[zion zig zag]

Nothing resets perspective like major health issues.

So true. Good luck to you KS.

[Brownski]

Kenny,

I've been dealing with dementia and my mom for a bit. It's been beyond intense as she's been living with us.

The one piece of advice I can give you is MAKE TIME FOR YOURSELF. This motherfucker will swallow you whole if you don't take just a little time for yourself on the regular.

Godspeed.

This is good advice. You have to take care of yourself in order to help others. My grandmother had it. Luckily there are a lot of us in my family so it didn’t fall 100% on my dad or any one family member. Later on the workload again got spread out when my mom got dementia and my dad’s Parkinson’s got worse. Lots of people will say “if there’s anything I can do…” My advice is take them up on it when you need help.

[k2skier112]

Vibes man, stay strong

This shit took down my mom, luckily it didn't hit her until she was in her upper 80's, if that's lucky.
I couldn't even imagine it at such a young age, FUCK.

My dad was an extreme redneck about drugs and liquor. Between my brother making ganja butter, and my fudge recipe, having some edible THC made her outbursts much, much better. He actually asked me for more when he ran out after dosing her for the first time

[Ted Striker]

Fuck, what a gut punch. Really, really sorry for you, that's just incredibly difficult and unfair.

We're currently going through this with my mom, but mercifully it's more of a late-onset.

[mcski]

Repeating what was said about taking time for yourself and recording her stories as best as you can. Took care of my dad for a long time, but luckily dementia was not part of the equation. I don’t know how I could have managed that. And 54 is just fucking unfair bullshit. She’s lucky to have you. Enjoy what you can in the moment

[Danno]

Fuck. Sorry to hear. It's an evil disease. My ex-MIL has it and it's slowly heartbreaking.

And my ex-SIL just passed away. My ex had to tell her mom about it, took a nap, and had to tell her about it again when she woke up. Fuck, it's awful.

[Kenny Satch]

I wanted to give an update and also thank everyone for their concern and advice.

I got off my ass and stopped worrying about what I can't control and started to focusing on the good days by letting the bad ones roll off my back. I also got her into a private Day Program which is like a daycare for adults and wow what a difference its made. She goes 3 days a week and she loves it. Everytime I pick her up she looks like she's had the time of her life. Seeing her happy has been the best medicine ever!

I realized I had to stop trying to do it all myself and let go of my fear of leaving her with people I don't know. Luckily the centre she goes to is a family operation and they love helping people and it shows. I truly lucked out with this place.

It feels good to start living again. Can't believe I stayed in that funk of depression for 2 years. I'm never going back into that pit ever again.


Maria. The love of my life.


Here she is with her late cousin Nicolas that had severe Cerebral Palsy. She could always get him to smile. I love her smile

[cat in january]

Good to hear man

[Kenny Satch]

Thanks.

[hawkgt]

FKNA, good to hear

[Kenny Satch]

Thank you

[Cisco Kid]

Good news.