Page 2 of 4 FirstFirst 1 2 3 4 LastLast
Results 26 to 50 of 91

Thread: Fuck Alzheimers

  1. #26
    Join Date
    Oct 2009
    Location
    Maine Coast
    Posts
    4,482
    It’s in my family and scares the shit out of me. Big vibes Kenny. Hang in there. I know how hard it can be. Lean on family and friends so you can get some time for you.

  2. #27
    Join Date
    Oct 2010
    Location
    entrapped
    Posts
    2,354
    Kenny awful news. I hope you and your family are able to make the best of what is left. Terrible diagnosis.

    Consider reaching out early to therapists, palliative care and the like. They can help you negotiate the landscape.

    For clarification, I am not vying for you to give up hope. Only hoping you can make the best of the good times.

    Really awful.

    Sent from my SM-S908U1 using Tapatalk
    No matter where you go, there you are. - BB

  3. #28
    Join Date
    Nov 2011
    Location
    Ontario Canada eh
    Posts
    4,259
    Quote Originally Posted by Buster Highmen View Post
    >>hugs<< K.
    I think I've oozed over my experience with dementia enough here.

    But there are various things to try. There's lots of quacks out there, but there's some studies that link various forms of dementia to diet.
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6918878/ .
    https://www.mcgill.ca/oss/article/fo...eimers-disease

    There's a Ted talk on youtube where a doctor is able to reduce the effects of her husband's dementia by diet change.
    (edit)

    Anyway, I'm pulling for you, we're all in this together.
    Thanks for this.
    I've been using it and it does help

  4. #29
    Join Date
    Nov 2011
    Location
    Ontario Canada eh
    Posts
    4,259
    Lots of great advice and the messages of not giving up hope do help.
    Believe me it's not all bad because we do have good moments where she can recall things and the days she can't, I try not to dwell on it. It's just crushing when she doesn't know we are married but she always remembers that we are in love. I'll take that over anything else. I fear the day her short term memory is all but gone and her ask me who I am. We go back 17 years so maybe it's long enough that she'll remember me. I clearly worry too much.

    Again thanks. You all

  5. #30
    Join Date
    Jan 2005
    Location
    Access to Granlibakken
    Posts
    10,954
    As was posted already, she’s lucky to have you.

  6. #31
    Join Date
    Nov 2011
    Location
    Ontario Canada eh
    Posts
    4,259
    Quote Originally Posted by old goat View Post
    It's hard to think of anything worse. But it sounds like she's at least lucky to have you.
    Quote Originally Posted by frorider View Post
    As was posted already, she’s lucky to have you.
    Thanks to you both

  7. #32
    Join Date
    Feb 2015
    Location
    MA
    Posts
    4,395
    ++++vibes++++ your way, KS.

  8. #33
    Join Date
    May 2009
    Location
    inpdx
    Posts
    19,771

    Fuck Alzheimers

    Kenny
    Stay present and enjoy the times you have
    Too young
    Love & peace to your family

  9. #34
    Join Date
    Sep 2001
    Location
    Orangina
    Posts
    8,874
    Kenny,

    I've been dealing with dementia and my mom for a bit. It's been beyond intense as she's been living with us.

    The one piece of advice I can give you is MAKE TIME FOR YOURSELF. This motherfucker will swallow you whole if you don't take just a little time for yourself on the regular.

    Godspeed.
    "All God does is watch us and kill us when we get boring. We must never, ever be boring."

  10. #35
    Join Date
    Oct 2010
    Posts
    309
    Joe Rogan has an interesting podcast with max lugavere about Alzheimerís thatís worth a listen. Could be helpful. Fuck Alzheimerís

  11. #36
    Join Date
    Oct 2003
    Location
    slc
    Posts
    17,410
    Man, sorry Kenny. Early-onset is a tragic fate.

  12. #37
    Join Date
    Mar 2005
    Location
    Colorado
    Posts
    2,707
    Quote Originally Posted by PB View Post
    ... We all whine about our physical issues (joints, connective tissue, muscles, bones) but they pale in comparison to brain probs..
    This ^^

    Continue to make memories, and bring up old ones often. Music and photos can help sometimes. Take a lot of walks together while you can, be in nature. Sending good thoughts.

  13. #38
    Join Date
    Dec 2009
    Location
    The Mayonnaisium
    Posts
    10,302
    Nothing resets perspective like major health issues.

  14. #39
    Join Date
    Oct 2003
    Location
    Ogden
    Posts
    8,819
    Quote Originally Posted by Mazderati View Post
    Nothing resets perspective like major health issues.
    So true. Good luck to you KS.

  15. #40
    Join Date
    Jul 2016
    Location
    NY
    Posts
    3,150
    Quote Originally Posted by The Reverend Floater View Post
    Kenny,

    I've been dealing with dementia and my mom for a bit. It's been beyond intense as she's been living with us.

    The one piece of advice I can give you is MAKE TIME FOR YOURSELF. This motherfucker will swallow you whole if you don't take just a little time for yourself on the regular.

    Godspeed.
    This is good advice. You have to take care of yourself in order to help others. My grandmother had it. Luckily there are a lot of us in my family so it didnít fall 100% on my dad or any one family member. Later on the workload again got spread out when my mom got dementia and my dadís Parkinsonís got worse. Lots of people will say ďif thereís anything I can doÖĒ My advice is take them up on it when you need help.

  16. #41
    Join Date
    Dec 2011
    Location
    PNW
    Posts
    7,163
    Vibes man, stay strong

    This shit took down my mom, luckily it didn't hit her until she was in her upper 80's, if that's lucky.
    I couldn't even imagine it at such a young age, FUCK.

    My dad was an extreme redneck about drugs and liquor. Between my brother making ganja butter, and my fudge recipe, having some edible THC made her outbursts much, much better. He actually asked me for more when he ran out after dosing her for the first time

  17. #42
    Join Date
    Mar 2008
    Location
    the ham
    Posts
    13,215
    Fuck, what a gut punch. Really, really sorry for you, that's just incredibly difficult and unfair.

    We're currently going through this with my mom, but mercifully it's more of a late-onset.

  18. #43
    Join Date
    Apr 2006
    Location
    SF & the Ho
    Posts
    8,865
    Repeating what was said about taking time for yourself and recording her stories as best as you can. Took care of my dad for a long time, but luckily dementia was not part of the equation. I donít know how I could have managed that. And 54 is just fucking unfair bullshit. Sheís lucky to have you. Enjoy what you can in the moment

  19. #44
    Join Date
    Sep 2005
    Location
    Not in the PRB
    Posts
    32,019
    Quote Originally Posted by Danno View Post
    Fuck. Sorry to hear. It's an evil disease. My ex-MIL has it and it's slowly heartbreaking.
    And my ex-SIL just passed away. My ex had to tell her mom about it, took a nap, and had to tell her about it again when she woke up. Fuck, it's awful.
    "fuck off you asshat gaper shit for brains fucktard wanker." - Jesus Christ
    "She was tossing her bean salad with the vigor of a Drunken Pop princess so I walked out of the corner and said.... "need a hand?"" - Odin
    "everybody's got their hooks into you, fuck em....forge on motherfuckers, drag all those bitches across the goal line with you." - (not so) ill-advised strategy

  20. #45
    Join Date
    Nov 2011
    Location
    Ontario Canada eh
    Posts
    4,259
    I wanted to give an update and also thank everyone for their concern and advice.

    I got off my ass and stopped worrying about what I can't control and started to focusing on the good days by letting the bad ones roll off my back. I also got her into a private Day Program which is like a daycare for adults and wow what a difference its made. She goes 3 days a week and she loves it. Everytime I pick her up she looks like she's had the time of her life. Seeing her happy has been the best medicine ever!

    I realized I had to stop trying to do it all myself and let go of my fear of leaving her with people I don't know. Luckily the centre she goes to is a family operation and they love helping people and it shows. I truly lucked out with this place.

    It feels good to start living again. Can't believe I stayed in that funk of depression for 2 years. I'm never going back into that pit ever again.


    Maria. The love of my life.
    Click image for larger version. 

Name:	Screenshot_20230313-204920~2.png 
Views:	117 
Size:	991.1 KB 
ID:	451762

    Here she is with her late cousin Nicolas that had severe Cerebral Palsy. She could always get him to smile. I love her smile
    Click image for larger version. 

Name:	Screenshot_20230313-204926.jpg 
Views:	130 
Size:	441.2 KB 
ID:	451763

  21. #46
    Join Date
    Oct 2009
    Location
    Maine Coast
    Posts
    4,482
    Good to hear man

  22. #47
    Join Date
    Nov 2011
    Location
    Ontario Canada eh
    Posts
    4,259
    Thanks.

  23. #48
    Join Date
    Jan 2008
    Location
    you see a tie dye disc in there?
    Posts
    4,527
    FKNA, good to hear

  24. #49
    Join Date
    Nov 2011
    Location
    Ontario Canada eh
    Posts
    4,259
    Thank you

  25. #50
    Join Date
    Sep 2010
    Location
    In your Dreams
    Posts
    1,753
    Good news.
    Seeker of Truth. Dispenser of Wisdom. Protector of the Weak. Avenger of Evil.

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •