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  1. #76
    Join Date
    May 2015
    Posts
    19
    it's becoming apparent to me, sadly, that i will need pain management for my life for chronic arthritic pain.perhaps the break i had is so wretched because of my age as well as it was, as the dr said "a very very bad break".
    im bordering on being depressed and thankful my very good friend is a shrink.but right now, not thrilled w the pain dr im using-never see him -only see the PA.im weaning down on my own and have done many things to try and make it better.
    sorry i sound like such a downer but that's how i feel.

  2. #77
    Join Date
    Jan 2017
    Posts
    14
    Quote Originally Posted by Bett View Post
    it's becoming apparent to me, sadly, that i will need pain management for my life for chronic arthritic pain.perhaps the break i had is so wretched because of my age as well as it was, as the dr said "a very very bad break".
    im bordering on being depressed and thankful my very good friend is a shrink.but right now, not thrilled w the pain dr im using-never see him -only see the PA.im weaning down on my own and have done many things to try and make it better.
    sorry i sound like such a downer but that's how i feel.
    I completely understand - as far as I'm concerned, feel free to vent. For some people, these pilon fractures affect the rest of their lives. I have 2 friends who will never run again because of one, and I'm not sure if I'll ever be able to do a sustained run again (thankfully for me I never like running anyways).

  3. #78
    Join Date
    Apr 2017
    Posts
    10
    hgh could be very beneficial for major injuries like this. it wasnt readily available for me (or i would've used it) but a ton of pro athletes use it for recovery and healing of bones. it can be very expensive, but i know there are doctors that can prescribe it too

  4. #79
    Join Date
    Jan 2017
    Posts
    14
    Figured I'd post an update. Had my (infected) hardware removed just under 2 weeks ago.
    Surgery was really late Tuesday night (Sept 26). Was getting around with a cane or crutches the first day (Wed) by Friday was back in the office with the cane. By the end of the weekend both cane and crutches were parked in the bedroom not to be used since.

    Thus far, seems to be healing up pretty well. Pain is minimal - I took some pain meds the first night, one the second night to get to sleep, and just the occasional ibuprofen for a couple days after that. Absolutely nothing since Saturday the 30.

    Swelling was minimal compared to previous surgeries, and is basically gone at this point. My biggest concern is obviously kicking the infection for good, since that's what necessitated the removal to begin with.

    Overall though I think I'll be happy it's out - have the distinct feeling things will be a lot more comfortable once the million and one staples in my four zippers are out. Honestly the biggest "pain" is from the nerves regrowing - there is a rather large area that is numb in my ankle and foot, but the nerves are trying to regrow, so they're going bonkers. The other night my sheets felt like course grit sandpaper was being scrubbed on my foot :P

  5. #80
    Join Date
    Sep 2015
    Posts
    56
    I guess I'll give an update as I finally thew in the towel and had my ankle fused last Friday. All of the skiing, MTB and walking over the past 18 months wore my cartiladge completely out and my talus started wearing a notch into my tibia. I dealt with the pain thru this ski year and then had surgery as I could no longer walk without major pain. I'm only a week in but I'm already starting to realize why everyone says, "had I known, I would have gotten it fused sooner". Obviously I can't weight bear for another 5 weeks so I won't know how good it is but when I'm sitting on the couch, I already have less swelling and nerve pain 6 days after surgery than I did before. Kayaking, MTB and motocross should all be pain free after the surgery so I'm not researching some new 3 piece ski boots to so I can start prepping for next season. Heck with this fusion I may even start climbing again as that was one thing I couldn't even attempt after the pilon fracture.

  6. #81
    Join Date
    Jan 2017
    Posts
    14
    Quote Originally Posted by Red7 View Post
    I guess I'll give an update as I finally thew in the towel and had my ankle fused last Friday. All of the skiing, MTB and walking over the past 18 months wore my cartiladge completely out and my talus started wearing a notch into my tibia. I dealt with the pain thru this ski year and then had surgery as I could no longer walk without major pain. I'm only a week in but I'm already starting to realize why everyone says, "had I known, I would have gotten it fused sooner". Obviously I can't weight bear for another 5 weeks so I won't know how good it is but when I'm sitting on the couch, I already have less swelling and nerve pain 6 days after surgery than I did before. Kayaking, MTB and motocross should all be pain free after the surgery so I'm not researching some new 3 piece ski boots to so I can start prepping for next season. Heck with this fusion I may even start climbing again as that was one thing I couldn't even attempt after the pilon fracture.
    Glad to hear you're in a lot less pain. I have a number of "friends" in my FB group (Pilon Fractures SUCK!) that have ended up with a fusion and definitely feel better afterwards.

    I guess I can give an update as well:
    Last November I was finally feeling able to return to the gym and more "regular" workouts. That has done a lot to improve my leg overall, and for the most part, in my day to day life, it's not a huge concern. Sure, if I push it on a very long day it'll swell up and be a bit more stiff in the AM, but pain is minimal to the point I don't notice it unless I'm trying to really work it's ROM or pushing the ROM (still seeing very small improvements in my plantar flexion, dorsi seems stuck where it's at).

    I can jog, hobble run, walk normally, run up and down stairs fairly well, jump (still doing only small jumps, but getting braver as the muscles and coordination rebuild), balance is improving on that leg (still a long ways from my other leg though), etc. I stretch and work it daily still, practice things like balance in my normal activities.

    Riding an racing my leg isn't much of an issue EXCEPT that the nerve damage means I can't feel the peg or shifter, so I'm really have to retrain my muscle memory and remember to be VERY deliberate with my movements or I'll bump the shifter or have my foot in not quite the right place without realizing it until the bike lurches or I'm struggling to get into position on corner entry.

    All things considered though, I'll take it!!

    Even had my first race crash since the leg, managed to high side myself when I tried something new (answer was NO, NO I cannot get on the throttle harder and sooner in that spot)....made it back out for our last race of the day after that, too!

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  7. #82
    Join Date
    May 2015
    Posts
    19
    bett- i know havent been around. not much change, still lots of pain. dr tried thinking out of the box, plastic surgeon nixed the idea of a fat graft, skin too fragile. ok, still on some pain meds, much less, but cant just cant stand the pain. rain of motion im told good, and almost 4 yrs later, still having pt, once a week, still going to gym doing all the ankle exercises, leg press and now a complication in my husband's health so im kind of not going to the gym every day, and still attempting to get to pt once a week.
    long haul for husband and im still in pain. he also tried breaking up the scar tissue, which was brutal, until my skin tore,yup plastic guy was right, and then that lovely shot directly into the ankle joint. brutal to say the least but i took it like a champ. did it help? i have no idea as im still in god awful pain two days before it rains or when it snowed. just not a good break to have at my age, im guessing.
    now to deal with serious health stuff with my husband. first had heart ablation, and by accident found lung cancer. at sloan , and praying it's not anywhere else. sorry to be such a buzz kill, but it's my life right now. pray.

  8. #83
    Join Date
    Jan 2019
    Posts
    6

    MY PILON

    Did a Pilon fracture on 11-5-18 3 operations [22 screws 3 plates] 7 weeks from last one.Hoping to ski race again is that wishfull thinking?Me a 63 Yr old Master racer,very active weight lift[power] biking walking hike some Aikido, East coast boy love the ice. Tried to post a few days ago didn't happen,I guess do to just joining.GOOD DAY PAUL,PS See it posted so if anybody is interested I'll keep it updated.Help the next injured on there recovery. Update 2-28-19 Doctor gave me the go ahead for weight barring, informed me to listen to Therapist stated 'a little pain is OK not alot'.3-1-19 took my first steps in 17 weeks with crutches, no pain just numbness tingle top of foot and stiffness ankle. Therapist advised me to pace myself next day on 2nd did lots of stretching walk to corner and back with crutches 222 steps, lots of work ahead of me but NO HILL FOR A CLIMBER. UPDATE 3-13-19 week #15 from last operation Lots of pain last nite [almost took okie would of been first sense Dec 31st] wore boot 5 hours yesterday Iced last nite. Heat and ice today feeling I am having a set back can anybody shed some lite on this?Didnt do any stretching or exersize all day didn't want to over do it am I wrong? stretch daily? PT went very well Monday 11th even walked across floor no assistance confused can I get some input? UPDATE week # 17 from last Operation#20 sense crash 3/30/19, seen Doctor on 28th bones are healing well.I was in lots of pain Doc said I tweek or been over doing Exersize,very true been PT twice a week also joined a pool Spa so been walkin running jumping in pool.I'll need to only due 2 days a week at pool,2 at PT.Doc said slow and steady wins this race,and I will have a bad day time to time.This is truly a long haul injury.But Doc is happy so far.Foot tingle starting to go away Ankel swells big time if weight barring, been going back and forth Kane to Crutched some days just Kane. Soaking in Epson salt in am helps then icing 3 to 4 times a day.
    Last edited by PET; 03-30-2019 at 05:53 AM.

  9. #84
    Join Date
    Apr 2019
    Posts
    1
    Since Im new it wont let me post URLs, but there is a great and very active Facebook group called Pilon Fractures Suck! that had been a great support group since my unfortunate pilon ski disaster on 2/17/19.

  10. #85
    Join Date
    Jan 2019
    Posts
    6

    PILON

    THANKS PHIL, check it out lots of Info not a Face Book member but read some Blogs great. UPDATE Week #19 from operation having High pain days ankle swells as soon as weight applied. Therapist said still doing to much so dropping pool wants me to do ankle pumps and daily stretching and PT twice weekly that's it, keep weight off, so back walking on crutches. Oh I just want to thank the COLORADO MASTERS and CAM RACING TEAM MEMBERS, they really circled the wagons around me when this happened last Nov, got me to Hospital took care of my Van and many other little chores that I needed, Great people great racers. UPDATE Week #8 weight barring, Week #24 total, Doctor visit on 4/25/19 went well he is happy with healing progress Xrays look good said Bones are still filling in. Explained that my high pain level is due to everything healing coming together and bones filling in. Also have developed Planters Fasciitis so going to foot Doc next month, I guess its part of this Injury from no walking ect... for so long. Doctor wants me to rest more stay with stretching daily and drop Physical therapy to once weekly for now. So long and short of it I started doing PT four times weekly drop to twice now once, looks like I came out of the Gate way to fast.
    Last edited by PET; 04-27-2019 at 08:44 AM. Reason: UPDATE

  11. #86
    Join Date
    Jan 2019
    Posts
    6

    WEEK13WB UPDATE

    Hey Pil how's the healing? Me UPDATE week #13 [29 SENSE FALL] of weight barring started to make some gains about week#11WB,able to walk around house in A M and making lunch, a few days ago walk around in the Eve with out stupid pain. The last Doctors visits went well bones are still filling in healing Doc like what he seen move appointment up to 8weeks from every 4.Also seen Podiatry foot ankle specialist he raised my heal a bit [slimmed shoe] wants me to focus on stretching Achilles , next appointment 12 weeks. Doc's did advise of Ankle Fusion and Ankle replacement, far down the road, pretty much Arthritis related. Doing PT three times a week body is healing and dealing with that. So all in all I got a shot on being back on the snow next year may be the Bunnyhill green slopes but at least I'll be on skies. My boot fitter is going to hook me up with some soft boots I'll never get those stiff ass racing boots on by next season. Zack is right "Pilon fractures suck". Lets see at 63 two broken shoulders torn MCL, sprained Ankles, blown out back, Broken Ribs, worn out knees and I can't wait to get back on the snow. Maybe I've hit my head too many times.HAVE A GREAT DAY HEAL WELL LOVE LIFE PAUL.
    Last edited by PET; 06-04-2019 at 05:33 AM. Reason: ad ins

  12. #87
    Join Date
    Jan 2019
    Posts
    6

    WEEK 21 W.B.

    WELL DOC VISIT WENT WELL AS FAR BONES HEALING.PROBLEM IS THE ARTHRITES IS SETTING IN CAUSING LOTS OF PAIN.WEEK 18 AND 19 OF WB WERE OFF THE HOOK PAIN.SO GETTING CAT SCAN ON 8/1/19 THEN SEE ANKLE SPECIALEST ON 13th THEN ANOTHER DOC. WHOM DOES ANKLE REPLACEMENT.SO FROM THERE I'LL [AND DOCTORS] HAVE TO DECIDE ANKLE REPLACEMENT,ANKLE FUSION OR MAYBE LUCK OUT AND JUST REMOVE HARDWARE[ME WISHING] THE CAT SCAN SHOULD TELL THAT TAIL.I AM ABLE TO WALK IN HOUSE AND A BIT OUTSIDE MAYBE 2OO 300 STEPS A DAY MY DAY ENDS 2PM TO 5PM THEN NEED TO GET OFF FEET.SKIING RACING WITH ANKLE FUSION? I SURE WILL GIVE IT MY BEST TRY.GOOD DAY

  13. #88
    Join Date
    Jan 2019
    Posts
    6

    ANKLE FUSION

    Morning, anybody know someone whom skis with Ankle Fusion? Its in my very near future 10/2/19.

  14. #89
    Join Date
    Feb 2013
    Location
    Methow Valley
    Posts
    787
    I think I remember Lou Dawson from WildSnow has one. Good luck man!

  15. #90
    Join Date
    Jan 2019
    Posts
    6

    1YEAR PILON FRACTURE 5WK ANKLE FUSION UPDATE

    THANKS JOHN B FOR REPLY, so there is hope I'll be back on skis. Well my Pilon Fracture has led to a Ankle Fusion on 10 /2/19.Down to 14 screws 2 plates [3 screws are for fusion] from 22 screws 3 plates.4 doctor visits sense, 1st check wounds change bandages x ray, 2nd visit same,3rd visit install a Cast x ray,4th visit x ray remove Cast put a boot on note the boot has raised the pain level up not as bad as before Fusion [that was crazy pain].The pain drop on day 25 or so after the fusion. Pain is getting a bit better from first day of boot in install only 4 days ago.Doctor says all is going well I'll be no weight barring for 12 weeks or so total, then baby steps, no skiing this year. A walk with out pain would be a real joy after this year of injury. HAVE A GREAT DAY PAUL.PS Thanks Vets for our freedom.
    Last edited by PET; 11-10-2019 at 10:34 AM. Reason: AD ON

  16. #91
    Join Date
    Mar 2008
    Posts
    292
    Best wishes on your healing. I know there have definitely been folks on this forum skiing with a fusion. The issue is just finding a boot that allows you to slide in and out, some have mentioned Full Tilt, but would love to hear from people who have actually tried different boot brands so that I can share with others.
    Originally Posted by jm2e:
    To be a JONG is no curse in these unfortunate times. 'Tis better that than to be alone.

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